Epidermolysis Bullosa Clinic Information and Patient Resources
Information about Epidermolysis bullosa (EB)
- EB Facts
- EB Wound Care -Read tips about wound care for an EB child in Basic Care Tips for Epidermolysis Bullosa (EB) - A Parent's Guide by Lorraine Spaulding, edited by Anna Bruckner, MD.
(PDF) - EB wound care videos - Videos and documents prepared by Stanford
EB Organizations
- Epidermolysis Bullosa Medical Research Foundation (EBMRF)
- Dystrophic Epidermolysis Bullosa Research Association of America (DEBRA)
- DebRA International
- EB Parent Support Group
For information on support groups in Northern and Southern California, please refer to this website, which was developed by a parent of a child with EB:
Camps for children with severe skin conditions
Camp Wonder
This free summer camp for children with serious skin conditions is organized each year by the Children's Skin Disease Foundation.
Camp Painted Turtle
Offers camp programs year-long for children with severe chronic illnesses.
Camp Discovery
Each year, the American Academy of Dermatology sponsors a week-long camp at no cost for children ages 10 to 16 with serious skin conditions.
Wound Care Information and Supplies
- Tendra Molnlycke Wound Care Products (ex. Mepitel, Mepilex, etc)
- Kendall Wound Care Products
Derm Intranet