Dermatology

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Welcome to the Epidermolysis Bullosa Clinic

Thomas Leung, MD, PhD and Phuong Khuu, MD
Thomas Leung, MD, PhD and Phuong Khuu, MD

Epidermolysis bullosa (EB) is a rare genetic skin disorder that causes extreme skin fragility, leading to recurrent blister formation with even minor trauma. There are three major forms of EB: EB simplex (EBS), Junctional EB (JEB),and Dystrophic EB (DEB). Each type of EB differs in severity and clinical presentation. Caring for children with EB requires a multidisciplinary approach.

What is Epidermolysis Bullosa? Find out on our EB Facts page, or read an article about Epidermolysis Bullosa by M. Peter Marinkovich, MD., associate professor of dermatology and director of Stanford's Auto-Immune Blistering Clinic.

EB Clinic Overview - Our outpatient Epidermolysis Bullosa Clinic occurs once a month, usually on the third Friday of the month. The clinic is staffed by highly skilled pediatric specialists, experienced in the care of children with epidermolysis bullosa.

If you are a physician and would like to refer a patient to our EB Clinic, download a Consultation Request.PDF Document (PDF)

EB Research at Stanford - Research at Stanford University School of Medicine's Department of Dermatology is funded by the National Institutes of Health and the Epidermolysis Bullosa Medical Research Foundation (EBMRF). Research is directed at identifying new strategies for the treatment of EB.

EB Clinical Trials - We have started our gene transfer study for recessive dystrophic epidermolysis bullosa.

EB Patient Resources - Helpful links for more information about epidermolysis bullosa.

EB Physician Resources

 

Stanford Medicine Resources:

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